What can children living with lymphedema teach adults about confidence, community, and embracing life with a chronic condition?
In this July Lymphedema Patient Roundtable, special guest Isabelle “Izzy” Egeling joins the panel to reflect on volunteering with pediatric lymphedema patients at Camp Watchme alongside panelists Alexa and Olivia. They share memorable moments from camp, the emotions that come with seeing young people find belonging, and the inspiration they gained from campers confidently learning to understand and manage their lymphedema.
The conversation expands into the lifelong importance of peer support, mentorship, and connecting with others who truly understand. Panelist Evy also shares her journey from hiding her lymphedema to confidently modeling colorful compression garments, offering a powerful reminder that representation means seeing people with chronic conditions living full, joyful, and authentic lives.
The panel also answers patient questions about managing lymphedema in the summer heat, preparing for medical procedures, medication considerations, and finding practical compression solutions. Catherine closes the discussion with an encouraging update following complex reconstructive surgery for a chronic wound, including the multidisciplinary collaboration, persistence, and careful return to lymphedema therapies that supported her progress.
Watch the replay for an honest and hopeful conversation about growing up with lymphedema, finding community at every age, advocating for your needs, and refusing to put life on hold while waiting for your body to change.
Special thanks to our panel:
- Karen Ashforth, MS, OTR/L, CLT-LANA (karenashforth.com)
- Evy Dominguez, Lymphedema Patient (@evycalifornia)
- Isabelle Egeling, Lymphedema Patient (@izzyisabelle)
- Olivia Eggers, Lymphedema Patient (@olivianeggs)
- Alexa Ercolano, Lymphedema Patient and Lympha Press Marketing and Communications Specialist (@lymphielife)
- Angela Jones, Lipolymphedema Patient (@2018gethealthy)
- Tora Rocha, Lipolymphedema Patient (@toranado12)
- Catherine Rosenberg, Lymphedema Patient (@crosenberg1982)
- Nasreen Starner, OTR/L, CLT (@nasreenstarner)
Links and resources mentioned during the program:
- Mast cell resource: Dr. Larry Afrin and Dr. Tania Dempsey
- Webinar with Karen: How MCAS, hEDS, and POTS Show Up and Affect Lipedema Treatment
- Webinar with Karen: Why Do Some of my Patients Never Fully Get Better?
- The LymphaPod Garment by Lympha Press
This Roundtable was originally recorded live on July 14, 2026, and has been edited for time. The views and opinions expressed in this Patient Roundtable are those of the individual participants and do not necessarily reflect the official position of Lympha Press.
This video is intended for informational and educational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your healthcare provider with any questions about your condition or treatment.
Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and support the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.