November’s Lymphedema Patient Roundtable brought together expert guidance, inspiring patient experiences, and timely reminders about the importance of self-care, especially during the busy holiday season.
Moderator Brenda Viola welcomed lymphedema specialists Rachel Alonzo of Mayo Clinic and Karen Ashforth, along with patient advocates Angela Jones and Tora Rocha. In recognition of Veterans Month, special guests included retired Marine Corps Colonel Maria Long, Lympha Press representative Coco Hines, and veteran and lymphedema patient Kristi Madore.
Rachel Alonzo explained how modified decongestive therapy offers a more flexible approach to traditional Complete Decongestive Therapy (CDT). Rather than requiring intensive daily appointments, treatment can be adapted to patients’ schedules, finances, physical abilities, and personal goals. Karen Ashforth clarified that manual lymphatic drainage is just one component of CDT, alongside compression, exercise, and skin care.
Veteran Kristi Madore shared how using her Lympha Press pneumatic compression device has significantly improved swelling, comfort, and quality of life, even as she works toward greater consistency with treatment. Maria Long explained that eligible veterans can receive Lympha Press equipment through their VA providers, with costs covered by the VA. The conversation highlighted the importance of helping veterans access effective, convenient care.
The panel discussed the benefits of pneumatic compression, including customizable treatment options and garments designed for ease of use. Experts also emphasized the importance of recognizing possible infections and seeking prompt medical attention rather than dismissing concerning symptoms.
From Thanksgiving menus to family gatherings, panelists encouraged patients to listen to their bodies, make food choices that work for their individual needs, and prioritize rest and treatment. Whether following a Mediterranean-style diet, maintaining an exercise routine, or taking time to elevate their legs, patients were reminded that self-care is not selfish.
The evening closed with heartfelt expressions of gratitude for veterans, caregivers, clinicians, family, and the supportive lymphedema community.
Rachel Alonzo offered a particularly empowering reminder: Lymphedema management is not a pass-or-fail proposition. Patients have more power than they realize, and it’s okay to adjust their approach along the way.
The overarching message? “All or something.” Progress doesn’t require perfection. Every positive step matters, and no one has to navigate lymphedema alone.